Understanding your PROS diagnosis and its cause can help you and your doctor create a care plan

It is important to know if your abnormal growth, vascular, or lymphatic condition is caused by a PIK3CA mutation.

Knowing its cause can give doctors a more complete picture of the condition and help them make decisions about tests, follow-up procedures, and management that may be part of your care plan. Need help finding a diagnosis? These resources could help.

PROS may have features that are similar to other conditions (such as Proteus syndrome; capillary malformation-arteriovenous malformation, or CM-AVM, syndrome; Parkes Weber syndrome; Sturge-Weber syndrome; neurofibromatosis; or primary lymphedema), so a diagnosis may not be obvious right away.


Several steps may be needed to diagnose PROS. These could include:

Steps for PROS Diagnosis

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