Understanding your PROS diagnosis and its cause can help you and your doctor create a care plan
It is important to know if your abnormal growth, vascular, or lymphatic condition is caused by a PIK3CA mutation.
Knowing its cause can give doctors a more complete picture of the condition and help them make decisions about tests, follow-up procedures, and management that may be part of your care plan. Need help finding a diagnosis? These resources could help.
PROS may have features that are similar to other conditions (such as Proteus syndrome; capillary malformation-arteriovenous malformation, or CM-AVM, syndrome; Parkes Weber syndrome; Sturge-Weber syndrome; neurofibromatosis; or primary lymphedema), so a diagnosis may not be obvious right away.
Several steps may be needed to diagnose PROS. These could include:
You are now leaving the Novartis site and moving to an external website independently operated and not managed by Novartis Pharmaceuticals Corporation. Novartis assumes no responsibility for the site. If you do not wish to leave this site, click Cancel. Or click OK to continue.